A discussion forum for people living with diabetes and those involved in diabetes care in the UK. September 25th - October 31st 2005

Retinal screening access - Closed

All people with diabetes should have their eyes screened by a digital camera at least once a year.

Diabetes is the leading cause of blindness in people of working age in the UK yet treatment can prevent blindness in 90 per cent of those at risk if applied early and adequately.

  • Does your doctor or nurse ensure you get your eyes checked every year?
  • Have delays led to problems with your eyes?
  • If you have eye problems have you been given access to adequate treatment?
  • Are services in your area using innovative ways of reaching people?

Welcome to Diabetes Dialogue!

Posted by Barry on 23/09/2005 - 10:50

This is your space to tell us about your experience of living with diabetes and give us your views on diabetes care in the UK.

Remember – your comments will form the basis of a report on the state of diabetes care in the UK that will be presented to MPs and Peers in December 2005. So, this is your chance to share your views with the aim to make impact on the policy makers!

If you have any problems accessing the site at any time or have any questions about the forum please do not hesitate to contact us at this email address: edemocracy@hansard.lse.ac.uk

Many thanks and good luck.

Milica and Barry
Hansard Society e-Moderators team

Retinopathy

Posted by Michael Gibbons on 23/09/2005 - 11:42

Diabetic Retinopathy affects the blood vessels of the retina. It is the largest cause of blindness in people of working age in the UK.

Vision threatening retinopathy is rare in people with Type 1 diabetes between three and five years after diagnosis. But during the next two decades, nearly all people with Type 1 diabetes will develop some form of retinopathy. Also, up to 21% of people with Type 2 diabetes are already showing signs of retinopathy upon diagnosis, and most develop some degree of retinopathy over time.

Why is annual eye screening important? You can’t tell if your eyes have been damaged by diabetes, but if problems are identified, effective treatment can be administered in up to 90 per cent of cases.

In April 2003 Strategic Health Authorities (SHA’s) were given £27million over 3 years for digital cameras and related software. The Purchasing and Supplies Agency of the NHS negotiated discounts with manufacturers so that the more cameras you buy – the lower the price. If SHA’s buy cameras in ‘bulk’ and issue them to Primary Care Trusts (PCTs) rather than giving money for individual purchasing, this is a monetary saving.

Availability of screening appointments outside normal working hours could prove helpful in minimising the number of patients who fail to attend screening. Also, screening by optometrists, especially those located in large shopping complexes, could help screening services as they stay open later.

Michael Gibbons
Patient Representative on the Advisory Panel
National Screening Committee for Diabetic Retinopathy

Screening

Posted by Peter Smith on 23/09/2005 - 19:11

This subject ties in with early screening issues, after my diagnosis I recieved a retinopathy photo which showed evidence of leakage over a prolonged period, possibly up to 5 years.

My own Optician is now, after a further 30 months, only just able to make out the problem, if I had waited until he was able to see anything it could again have been too late, I am already awaiting my second course of laser treatment.

Early diagnosis and a holistic approach to our welfare is the only sensible way to tackle an issue which is begining to take on epidemic proportions.

retinal screening access - Conwy

Posted by macfi on 24/09/2005 - 05:27

Here in Conwy there is a screening programme maintained by the local health board. On diagnosis I was asked for permission to be included in the database. I now recieve an invitation each year to be screened and the podiatry service do an assessment at the same appointment - the retinopathy screening is done by a nurse specialist in a mobile clinic, which parks in your local surgery car-park - digital photographs are taken and you get the result a week or so later. The recall system seems to work well - I have been checked annually since diagnosis. I find this an innovative and very convenient service.

Effective Retinal Screening

Posted by Dr Katharine Mo... on 26/09/2005 - 16:03

Making retinal photography more accessible is the key here.

In Ayrshire only one High Street Optician provides this service. Kilgour's in Ayr.

What would encourage other Opticians to Opt in?

Retinal Screening

Posted by Ken Cunningham on 26/09/2005 - 16:28

In my part of East Sussex I have had the necessary photographs taken on my last two annual eye-checks at my local opticians but it has cost me £10 a time.

Retinal Screening

Posted by Delia Aldis on 26/09/2005 - 18:10

I have my eyes tested every year, and though after 20 years of diabetes I went to the hospital for several years, I now go to my local optician.
Though there is a machine to look into which gives a print out, there has never been any mention of a digital camera to specifically look for retinopathy. I am interested in what theses cameras look like and how they are used, also why they do not appear to be in use in this area and how one might find out the reasons for the variability in availability.

Cameras in bulk

Posted by iso8655 on 26/09/2005 - 18:26

I am very glad to see that the NHS is beginning to take the subject of Retinopathy a little more seriously now. The NHS was some 10 years behind other screening centres.
I do however still have to pay to get a regular photo (Annual) as the van that visits my GP's surgery with the camera keeps on breaking down. Perhaps the SHA should get a quote for a job lot of camera, van, etc......? The other advantage of paying is that my Optician discusses the images with me, compares pictures to all previous years and does not try to keep me in the dark. Perhaps some of the more modern staff could learn from this attitude and stop treating me as an idiot.

hihelly

Posted by hihelly on 26/09/2005 - 22:25

i feel i have had fantastic service at my local hospital, i had yearly photographs taken and last year it was picked up that i had prolific retinopathy that was progressing quite quickly, i was referred to opthalmology and seen within 2 months, he started laser in the clinic on that first appointment, i went every 6 weeks and after 4 sessions it had not really abated, so i was booked in to have pan retinal laser 2 weeks later, and had a further session 3 months later, finally after a year of treatment i have had the all clear and it has stopped progressing. I do not think i could have expected faster or more responsive service

Retinal screening

Posted by TerryT1 on 27/09/2005 - 03:21

The two success stories of diabetic care in my part of south London are retinal screening and podiatry.
The hospital automatically sends out an annual appointment for a retinal screening. Highly efficient and confidence-inspiring.

Terry T1
18 Lantus + novorapid